Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.

DONATE

READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.

DONATE

READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE
Research, Educate, and Empower
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
READ MORE

RESEARCH

Funding Pompe Disease research and providing up-to-date studies so you and your medical team can make informed decisions about treatment options.

EDUCATE

Helping you, your family, and the general public better understand Pompe Disease, and the role diet can have in its treatment.

EMPOWER

Working to empower patients, families, and individuals to live a healthier lifestyle through dietary change.  

Pompe Warrior Foundation - In The News

May 23, 2019 07:55 AM

“Two Twin Cities parents are using a special diet to help treat their son’s rare disease. It started as a hunch, and now has led to a Mayo Clinic pilot study.  Two-year-old Leo St. Martin was diagnosed with Pompe disease when he was just four months old. This means a complex sugar called glycogen builds up in his organs, and his body doesn’t have the right enzyme to break it down.   The build-up can lead to organ failure. In Leo’s case, his heart tissue was thick and swollen.” His heart had gotten so big, it was crushing his left lung,” Leo’s mother Anne St. Martin said. “They told us, ‘Don’t expect him to eat on his own, to breath on his own, to walk,'” said Leo’s father, Denis St. Martin. ”   Ellen Gales – KSTP -5

Link to read full story :https://kstp.com/medical/twin-cities-couple-cooks-up-possible-solution-to-sons-rare-disease-ketogenic-diet-pompe-disease-mayo-clinic/5352906/?cat=1

What Pompe Warrior Foundation is doing

Pompe Disease

See what medical professionals are saying about Pompe Disease and dietary methods of treatment

THE INFORMATION AND MATERIALS CONTAINED ON THIS WEBSITE (CONTENT) ARE FOR INFORMATIONAL PURPOSES ONLY AND DO NOT CONSTITUTE MEDICAL ADVICE; THE CONTENT IS NOT INTENDED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE, DIAGNOSIS, OR TREATMENT. ALWAYS SEEK THE ADVICE OF A PHYSICIAN OR OTHER QUALIFIED HEALTH PROVIDER WITH ANY QUESTIONS YOU MAY HAVE REGARDING A MEDICAL CONDITION. NEVER DISREGARD PROFESSIONAL MEDICAL ADVICE OR DELAY IN SEEKING IT BECAUSE OF SOMETHING YOU HAVE READ ON THIS WEBSITE.
Throughout this website you will see references to the ketogenic diet. Please be aware that there are many ways to implement a ketogenic diet — not all of which should be considered healthy. The Foundation’s goal is to share the founders’ personal experience using a highly specialized and very closely monitored version of the ketogenic diet as part of the treatment plan for their two-year-old son, Leo. If you or someone you know is battling Pompe disease, or another glycogen storage disease or lysosomal storage disease, we hope that you will find the information provided here useful in discussing the potential for dietary changes with your own doctors and care team as a part of an overall treatment plan.