individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
DONATE
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
individuals and families affected by Pompe Disease
and other Lysosomal Storage diseases.
PWF 2nd Annual Fundraiser
Libations & Donations
Saturday September 21, 2019
3:00 pm to 7:00 pm
Wabasha Brewing – St Paul, MN
Pompe Warrior Foundation - In The News
May 23, 2019 07:55 AM
“Two Twin Cities parents are using a special diet to help treat their son’s rare disease. It started as a hunch, and now has led to a Mayo Clinic pilot study. Two-year-old Leo St. Martin was diagnosed with Pompe disease when he was just four months old. This means a complex sugar called glycogen builds up in his organs, and his body doesn’t have the right enzyme to break it down. The build-up can lead to organ failure. In Leo’s case, his heart tissue was thick and swollen.” His heart had gotten so big, it was crushing his left lung,” Leo’s mother Anne St. Martin said. “They told us, ‘Don’t expect him to eat on his own, to breath on his own, to walk,'” said Leo’s father, Denis St. Martin. ” Ellen Gales – KSTP -5
Link to read full story :https://kstp.com/medical/twin-cities-couple-cooks-up-possible-solution-to-sons-rare-disease-ketogenic-diet-pompe-disease-mayo-clinic/5352906/?cat=1
What Pompe Warrior Foundation is doing
Pompe Disease
See what medical professionals are saying about Pompe Disease and dietary methods of treatment