POMPE WARRIOR FOUNDATION

Research, Educate, and Empower individuals and families affected by Pompe Disease and other Lysosomal Storage diseases.

Research

Funding Pompe Disease research and providing up-to-date studies so you and your medical team can make informed decisions about treatment options.

Educate

Helping you, your family, and the general public better understand Pompe Disease, and the role diet can have in its treatment.

Empower

Working to empower patients, families, and individuals to live a healthier lifestyle through dietary change.

Our Mission

The mission of the Pompe Warrior Foundation is to promote research, educate, and empower individuals and families affected by Pompe Disease and other Lysosomal Storage Diseases. We hope to highlight the importance of diet in treating these diseases. We will support research into new dietary treatments and utilize that research to educate individuals and the medical community.  We hope to create a happy and healthier lifestyle for all involved. We will empower patients, families, and medical professionals to explore how dietary changes may play a role in treating these rare diseases.

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Trace minerals and electrolytes are essential for the body's proper functioning but serve different roles. Trace minerals, needed in small amounts, are crucial for enzyme activity, growth, and immune health. Electrolytes, like sodium and potassium, m
Understanding carbs: they're essential for energy but can lead to glycogen storage and water retention, increasing inflammation. For those with neuromuscular and metabolic disorders, carb intake can exacerbate disease progression. It's not just about
Tickets on sale now through EventBrite. You can also purchase tickets at the door. Get ready to laugh for a good cause. Link below https://www.eventbrite.com/e/884209312857?aff=oddtdtcreator #pompewarrior #punchlinesforpompe #supportlocalcauses #c
Did you know electrolytes are crucial for rare disease patients? A study published in 1965 - Title: "Electrolyte and Acid-Base Disturbances in Patients with Neuromuscular Disorders" by L. Bartter, R. Irwin, and C. G. Lawton highlights thei
"Today, on International Pompe Disease Day (4/15/24), let's remember that Pompe affects people worldwide. Let's care about rare diseases and support those in our global community. Help us fund research into Pompe disease by supporting @pompewarr
Knowing your specific genetic mutation is crucial for tailored treatments, outcomes, research, and support. When a mutation is listed as "unknown" in a database, it typically means that the specific mutation has not been characterized or i
Leo's calcium levels were so low, we thought he would break any time he bumped into anything. But after some genetic testing, we discovered he's just a calcium absorption rebel. Turns out, many Pompe patients struggle with absorption because of pesk

What We Do