Talking To Your Doctor

At the Pompe Warrior Foundation (PWF), we understand how intimidating a diagnosis of Pompe Disease can be to a family and/or an individual. During the initial months following a Pompe diagnosis, the amount of new information, concepts, and even medical vocabulary can be overwhelming. Getting caught up on the latest research concerning Pompe can substantially improve your understanding and communication with your doctor about your treatment plan. Educating yourself or finding an educated person to help teach you is step one on your path to conquering Pompe Disease. 

PWF suggests reviewing with your medical team the following categories to show why dietary interventions can benefit the patient. Each category will have links to published medical studies and explain how they can be applied to Pompe Disease.  

*Use the links below for information on specific topics.

Take your time with the studies and links on these page to educate yourself on Pompe Disease and what we are trying to accomplish at PWF. We would love to hear your thoughts, comments and questions as well. Please contact Denis -  denis@pompewarriorfoundation.com.